Tuesday, January 12, 2016
Jan 12th: day 6
I also am not being allowed solid foods starting tomorrow because of my system. It doesn't know how to process solids anymore and due to having now been diagnosed with SMA syndrome and gastroparesis literally my stomach doesn't work and artery is choking my intestines. So if I don't do liquids I risk my stomach exploding, being rushed to a surgery they don't think I would survive and if I do survive being on a tube. So all these fears I had. All these times didn't think I was sick enough...well....clearly I am.
So learn from me. If you are struggling get help now. Let your rock bottom be not wanting to be where I am. Sitting in a hospital room instead of thriving and living. Rolling in pain after eating solids. Having to eat puddings, applesauce, and cheerios like a baby all because of your GI system. Being on constant monitors. Not able to stand longer than 10 minutes. And constantly scared you won't survive the night. Fight now. For me. For you. For life.